My Avery

A little mud never hurt anybody…. RIGHT? At Pump it Up with Sissy! First Day of dance Wiping the Cheetos off of her fingers getting ready for yet another finger prick! She was so used to them by the time we were discharged, they would walk in the room and she would stick her pointer finger up in the air. At Pump it Up with Sissy, again.I told Avery the bucket was for her to put her blanket in at school….. This was her interpretation of that!  Crazy hair after the first EEG. Amazingly, she is not sedated in this picture, she was just that calm and relaxed for her second EEG.  I think she knew the alternative was being held down and having to make the 3 hour drive another day! She was such a trooper!

*** Avery has had two seizures over the course of the last year.  Both have been complex (meaning they last longer than normal) and her “reboot” time (time to come back full circle) lasts several, several hours.  We are now seeing a specialist in Jackson, Mississippi and we are very pleased with the options we were presented with and we have chosen for her care.  Continued prayers would be appreciated!