Friday, August 29, 2008

Go Away Gustav!!

As I write this I am extremely stressed about the upcoming Him-a-cane!! My babies will be well taken care of, I know that for a fact, but the thought of not being able to get to them completely stresses me out. The road from our home to the hospital is basically like the path to Little Red Riding Hood's Grandma's, nothing but woods, some deer and probably a Big Bad Wolf or two!! Meaning, lots of trees that could potentially block the roadway and prevent me from getting to my Muffins!! I am going to do what I did with the whole pregnancy and put it in God's hands! He's been so kind and gracious thus far I know he'll see me through this!!!

Now, what you all really want to hear... Updates!!

Cannon - The Can-Man has moved out of the Pods and into the Progressive Care area of the NICU. He is rocking out! He is on nasal canula only, receiving full feeds which means his PICC line comes out in the morning! He has a heart murmur caused by PDA. Here's some info on what that is.........
What Is Patent Ductus Arteriosus?
Patent ductus arteriosus (PDA) is a heart problem that occurs soon after birth in some babies. In PDA, there is an abnormal circulation of blood between two of the major arteries near the heart. Before birth, the two major arteries—the aorta and the pulmonary artery—are normally connected by a blood vessel called the ductus arteriosus, which is an essential part of the fetal circulation. After birth, the vessel is supposed to close within a few days as part of the normal changes occurring in the baby's circulation. In some babies, however, the ductus arteriosus remains open (patent). This opening allows blood to flow directly from the aorta into the pulmonary artery, which can put a strain on the heart and increase the blood pressure in the lung arteries.
What Are the Signs and Symptoms of Patent Ductus Arteriosus?
A heart murmur may be the only sign that a baby has patent ductus arteriosus (PDA). A heart murmur is an extra or unusual sound heard during the heartbeat.
Some infants may develop signs or symptoms of volume overload on the heart and excess blood flow in the lungs. Signs and symptoms may include:
Fast breathing, working hard to breathe, or shortness of breath, or in the case of a premature infant, need for increased oxygen or ventilatory support
Poor feeding and poor weight gain
Tiring easily
Sweating with exertion (such as while feeding)
He is not having any problems with his PDA, but they are keeping a close eye on it and have given him one dose of Indomethacin (in-doh-METH-ah-sin) a drug that helps close a PDA in premature infants. It does not usually work in full-term infants. It works by stimulating the PDA to constrict or tighten, closing the connection. He will receive another dose tonight and one more tomorrow night unless it closes in the meantime which means he will no longer need it. If it does not close we will discuss further treatments at that time, one of which could possibly be surgery. Cannon is such a fighter, I think the medicine will work just fine!!!

Gunner - This is my time to brag! My Gun-Man has rocked out! He was struggling in the beginning but is now the big man in charge! He is on full feeds, nasal canula and his PICC line was removed today. He is getting 22cc's of breastmilk every 3 hours mixed with Milk Fortifier. 30cc's is an ounce so that's just awesome if I do say so myself! He looks like a Big Dude when you walk out of Avery's pod into his. He weighed in at a whopping 2 pounds, 15.9 ounces today so we're not far from his birthweight and at 3 pounds he gets to wear clothes so they told me to bring them with me tomorrow and maybe Hannah Noelle will get to watch her brother get dressed for the first time!!

Lauren - She is going to be my delicate flower! She wants all the attention! She is still on CPAP and has an average of two to three heart drops a day for which she recieves a medicine called Aminophylline which is basically a caffeine stimulant. This is not uncommon at all in preemies, again, one of the many reasons they're in the NICU at such a great hospital!! Lauren also has a heart murmur caused by PDA. She is recieving the same medicine as Can-Man for that, but her's is a bit more serious than his. Extra blood is flowing through the heart because of the PDA and is not allowing as much blood flow through her "gut." I'm quoting the doctor now. This is causing her to have some feeding issues. She is the only one still recieving nutrients through her PICC line, but she is now up to 5 cc's of breastmilk every 3 hours and is showing no sign of residual so they will continue to up it as they feel she can tolerate it. She is also having a little trouble with jaundice. Please say an extra prayer for her every night!!!

Avery - What can I say, she's amazing! She came out the smallest, but is fighting back! She's almost to her birth weight, on 17cc's of breast milk every 3 hours and getting her PICC line out tomorrow. She is still on CPAP because she just wants to be lazy every now and then! She and Lauren are both on the CPAP, but at 21% which is room air. She will continue to get Aminophylline for the few heart rate drops she has, but will receive it through her feeding tube instead of through her PICC line!

Hannah Noelle - I have to update on her too! She is doing well, but is showing signs of jealous bones! Who can blame her? If it was one baby I'd tell her to get over it, but with four it's just constant baby attention and she feels left out. She's getting better with it and loves them so much she just doesn't understand why everytime we receive a "prize" for the babies she doesn't have a prize. I tried to explain to her she got prizes like that when she was born too, it's just way over her head!! We're going to Libby Lou's tomorrow so I'm sure that will remedy everything for a day or two!

Mommy and Daddy - I have recovered amazingly well. It's amazing how much faster your body recoups when you're not having to get up in the middle of the night with a baby. I feel much better than I did after having Hannah Noelle. I'm sure part of it is also having to have the drive to get up and travel to the NICU daily. I had some swelling issues shortly after their birth and low and behold I was allergic to the medicine they gave me to treat that! I'm covered in hives! I itch, itch, itch!! I'm on steroids now and it's slowly getting better!! Matt is doing great! He's not getting to see the Muffins as often as he would like because by the time he gets done with football practice it's too late to get to Mobile before they close from 6:30-8:00 and you can only make so many 8:00 visits without completely tiring yourself out, not to mention trying to juggle Hannah Noelle. She still doesn't completely trust us to pick her up yet, she's scared they're going to make us stay at the hospital again. She told me if they told me I had to stay I had to tell them I had a tiny daughter at home that needed me! I cried like a baby! Every time we pick her up from school, choir, etc.. she is trusting us more.
As a matter of fact, speaking of trust, I just heard a little voice say, mommy, we're supposed to eat popcorn and watch TV, remember? I guess that's my sign to log off and go have a pallet party with my 3 year old!!

Please continue to keep us in your prayers! Thank you so much for your continued support and friendship!! Keep the comments coming, they all make me smile!! Love to you all!

11 comments:

Dawn said...

I'm so relieved to hear all of the babies are doing so well. Thinking and praying for you all!

xoxo
Dawn

Deanna said...

Wonderful news to hear! I've been wondering about you guys during this "Gustav" business, but I agree with you, believe in God and He will DEFINITELY provide! Everything will work out for the best! Keep loving on ALL of your babies! I will continue to pray for the family. Can't wait to hear more updates.
Deanna

Margaret said...

Great, great, great to hear about all five of your kiddos. I love them all and continue to pray.
Love, Aunt Margaret

rickscher620 said...

How neat that your babies have a bday with a ring to it like Jenn's (KING QUADS)...I like that sorta thing! It's so encouraging to see how well your little ones are doing...especially since they were born at 34 weeks, much like hers will be! We'll be praying that those "bad ol' wolves" will just stay put and that God places HIS hedge of protection around you all durning the storms! A big shout out to Hannah Noelle too...it's not easy being a big sis! :)
Smiles~
Grammie Bear

Tubre Quads said...

Great post Sandra! I think yall are in the clear (other than some light rain and winds) for Gustav. Looks like he is heading west of us, which means way west of you. I hope no trees get in the way of you and your muffins!

I'll be praying the meds work for the PDA and no surgery will be necessary. They are doing great.

Keep on rockin,
Jac

jag said...

We will pray that Gustav shoves off and leaves you guys alone. Thank you for the updates. Your muffins truly are amazing.

Sara Tyre said...

congrats on your babies. Glad to everything is going well.

Moni Graf said...

Great update, Sandra! In the times we have communicated, I don't think I have ever told you this....but your babies' names are awesome! I just love them.

Hope the weather is kind to you and nothing stands in the way of you getting to your babes (or keeps you from getting back to your big girl at home).

Glad you're healing is going well. I think that was the toughest part for me. Postpartum sucked!

Love from KS,
Moni

Misty said...

The updates on the babies sounds great! We had one with PDA and one that seemed to love the cpap! Glad your recovery is going well too and that Gustav is leaving you alone for the most part.
Take care,
Misty
GGGG 21months

AZCRISANTI'S said...

THank you so much for commenting on our blog. I will definitely check out your blog....Congrats by the way!! I can't wait to read and catch up!
Kami

Darcy "bow makin mamma" said...

Hello! I saw your comment on amber's blog about where she got her bows! I actually make them and have my own website! If you are interested it is www.mydollysbows.com The headband jaileigh is wearing was the the stetchy headband! I can make them as small as you need them. Let me know if you have any questions you can contact me through my website.

Thanks!

Darcy